Harley Geiger, Center for Democracy and Technology, uses findings from a recent Markle survey to support the statement that there is a general agreement on the sensitivity of identifiable health information and individuals should know when such information is breached.
Markle, the Center for Democracy and Technology, and others respond to the Federal Trade Commission (FTC) on reducing the risk of information breaches and notifying consumers in the event of a breach.
Markle Connecting for Health and the Center for Democracy and Technology focus on the need for objective standards for judging whether a data breach presents significant risk.
In comments on the HHS federal health data breach notification provisions, Markle, CDT and collaborators recommend that HHS embrace a comprehensive set of information-sharing policies that include strong oversight and accountability mechanisms, adoption of trusted network design characteristics and the implementation of core privacy principles in addition to the technologies and methodologies listed in the guidance.
Discoverability
To improve national security, we must create a trusted information sharing system and facilitate access to critical data.