This paper is a collaborative work of the Personal Health Technology Initiative—a major effort by the Markle Foundation Health Program to advocate for patient empowerment through personal health records (PHRs) and other health information technologies.

The Markle Foundation wishes to thank the following people for drafting this paper: Josh Lemieux, Daren Nicholson, MD, David Lansky, PhD, and Clay Shirky. We also thank the members of the Personal Health Technology Council who reviewed this paper. The Council was established within Markle Connecting for Health to identify and recommend solutions for policy challenges affecting the adoption of PHRs and related technologies with a sharp focus on the needs and concerns of consumers.

Personal Health Technology Council


David Lansky, PhD, Markle Foundation (Chair)


Josh Lemieux, Markle Foundation

Daren Nicholson, MD


Tim Andrews, Health Innovation Partners

Wendy Angst, CapMed, A Division of Bio-Imaging Technologies, Inc.

Rodney Armstead, MD, FACP, AmeriChoice, United Health Group

Annette Bar-Cohen, MPH, National Breast Cancer Coalition

Cynthia Baur,* PhD, Office of Disease Prevention and Health Promotion, United States Department of Health and Human Services

John Benton, Epic Systems Corporation

Adam Bosworth, Google

Marc Boutin, JD, National Health Council

Patti Brennan, PhD, University of Wisconsin-Madison

Helen Burstin,* MD, MPH, Agency for Healthcare Research and Quality, United States Department of Health and Human Services

Rex Cowdry,* MD, Maryland Health Care Commission

Mary Jo Deering,* PhD, National Cancer Institute, National Institutes of Health, United States Department of Health and Human Services

Richard Dick, PhD, You Take Control

Stephen Downs, Robert Wood Johnson Foundation

John P. Driscoll, Medco Health Solutions, Inc.

Joyce Dubow, AARP Public Policy Institute

Esther Dyson, CNET Networks

Stefanie Fenton, Intuit

Ed Fotsch, MD, Medem, Inc.

Peter Frishauf, Healthcare Marketing & Communications Council, Inc.

Gilles Frydman, Association of Cancer Online Resources, Inc.

Janlori Goldman, Health Privacy Project

Ken Goodman, PhD, University of Miami

Jonathan Hare, Resilient

Jim Karkanias, Microsoft

J.D. Kleinke, Omnimedix Institute

Linda Kloss, RHIA, CAE, American Health Information Management Association

J.P. Little, RxHub, LLC

Kathleen Mahan, SureScripts

Jack Mahoney, MD, Pitney Bowes, Inc.

Phil Marshall MD, MPH, WebMD

Gail McGrath, National Patient Advocate Foundation

Omid Moghadam, Intel Corporation - Digital Health Group

Jonathan Parker, Americans for Health Care, Service Employees International Union

George Peredy, MD, Kaiser Permanente, HealthConnect

Ginger Price,* Department of Veterans Affairs

Alain Rappaport, MD, PhD, Medstory, Inc.

Alison Rein, National Consumers League

Marie Savard, MD, Savard Systems

Albert Shar, PhD, Robert Wood Johnson Foundation

Clay Shirky, New York University Graduate Interactive Telecommunications Program

Michael Simko, RPh, Walgreen Pharmacy Services

Joel Slackman, BlueCross BlueShield Association

Justin Starren, MD, Marshfield Clinic Research Foundation

Paul Tang, MD, Palo Alto Medical Foundation / American Medical Informatics Association

Randy L. Thomas, FHIMSS, IBM Center for Healthcare Management Business Consulting Services

Tony Trenkle,* Centers for Medicare & Medicaid Services

Rochelle Woolley, Woolley & Associates

Anne Woodbury, Fleishman-Hillard Health Solutions Navigator

Matthew Wynia, MD, Institute for Ethics, American Medical Association



*Note: State and Federal employees participate in the Personal Health Technology Council but make no endorsement.

©2006-2012, Markle Foundation

These works were originally published as part of the Markle Connecting for Health Common Framework: Resources for Implementing Private and Secure Health Information Exchange. They are made available free of charge, but subject to the terms of a License. You may make copies of these works; however, by copying or exercising any other rights to the works, you accept and agree to be bound by the terms of the License. All copies of these works must reproduce this copyright information and notice.