This paper is a collaborative work of the Personal Health Technology Initiative—a major effort by the Markle Foundation Health Program to advocate for patient empowerment through personal health records (PHRs) and other health information technologies.
The Markle Foundation wishes to thank the following people for drafting this paper: Josh Lemieux, Daren Nicholson, MD, David Lansky, PhD, and Clay Shirky. We also thank the members of the Personal Health Technology Council who reviewed this paper. The Council was established within Markle Connecting for Health to identify and recommend solutions for policy challenges affecting the adoption of PHRs and related technologies with a sharp focus on the needs and concerns of consumers.
Personal Health Technology Council
Daren Nicholson, MD
Wendy Angst, CapMed, A Division of Bio-Imaging Technologies, Inc.
Rodney Armstead, MD, FACP, AmeriChoice, United Health Group
Annette Bar-Cohen, MPH, National Breast Cancer Coalition
Cynthia Baur,* PhD, Office of Disease Prevention and Health Promotion, United States Department of Health and Human Services
John Benton, Epic Systems Corporation
Adam Bosworth, Google
Marc Boutin, JD, National Health Council
Patti Brennan, PhD, University of Wisconsin-Madison
Helen Burstin,* MD, MPH, Agency for Healthcare Research and Quality, United States Department of Health and Human Services
Rex Cowdry,* MD, Maryland Health Care Commission
Mary Jo Deering,* PhD, National Cancer Institute, National Institutes of Health, United States Department of Health and Human Services
Richard Dick, PhD, You Take Control
Stephen Downs, Robert Wood Johnson Foundation
John P. Driscoll, Medco Health Solutions, Inc.
Joyce Dubow, AARP Public Policy Institute
Esther Dyson, CNET Networks
Stefanie Fenton, Intuit
Ed Fotsch, MD, Medem, Inc.
Peter Frishauf, Healthcare Marketing & Communications Council, Inc.
Gilles Frydman, Association of Cancer Online Resources, Inc.
Janlori Goldman, Health Privacy Project
Ken Goodman, PhD, University of Miami
Jonathan Hare, Resilient
Jim Karkanias, Microsoft
J.D. Kleinke, Omnimedix Institute
Linda Kloss, RHIA, CAE, American Health Information Management Association
J.P. Little, RxHub, LLC
Kathleen Mahan, SureScripts
Jack Mahoney, MD, Pitney Bowes, Inc.
Phil Marshall MD, MPH, WebMD
Gail McGrath, National Patient Advocate Foundation
Omid Moghadam, Intel Corporation - Digital Health Group
Jonathan Parker, Americans for Health Care, Service Employees International Union
George Peredy, MD, Kaiser Permanente, HealthConnect
Ginger Price,* Department of Veterans Affairs
Alain Rappaport, MD, PhD, Medstory, Inc.
Alison Rein, National Consumers League
Marie Savard, MD, Savard Systems
Albert Shar, PhD, Robert Wood Johnson Foundation
Clay Shirky, New York University Graduate Interactive Telecommunications Program
Michael Simko, RPh, Walgreen Pharmacy Services
Joel Slackman, BlueCross BlueShield Association
Justin Starren, MD, Marshfield Clinic Research Foundation
Paul Tang, MD, Palo Alto Medical Foundation / American Medical Informatics Association
Randy L. Thomas, FHIMSS, IBM Center for Healthcare Management Business Consulting Services
Tony Trenkle,* Centers for Medicare & Medicaid Services
Rochelle Woolley, Woolley & Associates
Anne Woodbury, Fleishman-Hillard Health Solutions Navigator
Matthew Wynia, MD, Institute for Ethics, American Medical Association
*Note: State and Federal employees participate in the Personal Health Technology Council but make no endorsement.
©2006-2012, Markle Foundation
These works were originally published as part of the Markle Connecting for Health Common Framework: Resources for Implementing Private and Secure Health Information Exchange. They are made available free of charge, but subject to the terms of a License. You may make copies of these works; however, by copying or exercising any other rights to the works, you accept and agree to be bound by the terms of the License. All copies of these works must reproduce this copyright information and notice.