Notes

  1. The Washington Post [homepage on the Internet]. Washington: The Washington Post Company; c2006 [cited 2006 May 8]. Top Web Domains; [about 4 screens]. Formerly available at: http://www.washingtonpost.com/wpdyn/content/
    custom/2006/03/31/CU2006033101136.html.
  2. Boutin P. A Grand Unified Theory of YouTube and MySpace. Slate [serial on the Internet]. 2006 April 28; [cited 2006 May 2]; [about 5 screens]. Available from: http://www.slate.com/id/2140635/.
  3. Clarke G. Wikipedia Eclipses CIA. The Register [serial on the Internet]. 2005 September 7; [cited 2006 May 4]; [about 3 screens]. Available from: http://www.theregister.co.uk/2005/09/07/wikipedia_growth/.
  4. Markle Connecting for Health. Connecting Americans to their Health Care [monograph on the Internet]. New York: Markle Foundation; 2004 July [cited 2006 May 17]. Available from: http://www.markle.org/publications/892-connecting-americans-their-health-care-executive-summary.
  5. Markle Foundation. Markle Foundation Survey Fact Sheet [monograph on the Internet]. New York: Markle Foundation; 2005 [cited 2006 May 17]. Available from: http://www.markle.org/publications/951-attitudes-americans-regarding-personal-health-records-and-nationwide-electronic-hea.
  6. National Committee on Vital and Health Statistics [homepage on the Internet]. Washington: Department of Health and Human Services; [updated 2005 September 9; cited 2006 May 8]. September 9, 2005 Report to Secretary Leavitt on Personal Health Record (PHR) Systems; [about 16 screens]. Available from: http://www.ncvhs.hhs.gov/050909lt.htm.
  7. Tang P et al. Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption. J Am Med Inform Assoc. 2006 Mar-Apr;13(2):121-126.
  8. Boutin P. A Grand Unified Theory of YouTube and MySpace. Slate [serial on the Internet]. 2006 April 28; [cited 2006 May 2]; [about 5 screens]. Available from: http://www.slate.com/id/2140635/.
  9. Anderson G. Partnership for Solutions [slide presentation]. 2004; [cited 2006 May 2]. Available from: http://www.partnershipforsolutions.org/DMS/files/anderson_cdc.ppt.
  10. Markle Connecting for Health. The Architecture for Privacy in a Networked Health Information Environment [monograph on the Internet]. New York: Markle Foundation; 2006 [cited 2006 May 17]. Available from: http://www.markle.org/health/markle-common-framework/connecting-professionals.
  11. Markle Foundation. Markle Foundation Survey Fact Sheet [monograph on the Internet]. New York: Markle Foundation; 2005 [cited 2006 May 17]. Available from: http://www.markle.org/publications/951-attitudes-americans-regarding-personal-health-records-and-nationwide-electronic-hea.
  12. Markle Foundation. Electronic Health Information Exchanges: Consumer and Patient Principles for System Design [monograph on the Internet]. New York: Markle Foundation; 2005 [cited 2006 May 17]. Available from: http://www.markle.org/publications/878-electronic-health-data-exchanges-patient-and-consumer-principles-system-design.
  13. Personal Health Technology Council. Letter to Secretary Leavitt, March 6, 2006 [monograph on the Internet]. New York: Markle Foundation; 2006 [cited 2006 May 17]. Available from: http://www.markle.org/publications/868-letter-personal-health-technology-council-ahic.
  14. Consumer Empowerment Working Group. Report to American Health Information Community, March 7, 2006 [monograph on the Internet]. Washington: American Health Information Community; 2006 [cited 2006 May 17]. Available from: http://www.hhs.gov/healthit/documents/AHICMarchNotebook.pdf.
  15. Markle Connecting for Health Steering Group and Personal Health Technology Council. Opportunities for CMS Action in Support of Personal Health Records [monograph on the Internet]. New York: Markle Foundation; 2005 [cited 2006 May 17]. Available from: http://www.markle.org/publications/1256-opportunities-cms-actions-support-personal-health-records.
  16. Shi L, Singh D. Essentials of the US Health Care System. Sudbury, MA: Jones and Bartlett Publishers, Inc.; 2004.
  17. Blendon RJ et al. Common Concerns amid Diverse Systems: Health Care Experiences in Five Countries. Health Aff. 2003 May-Jun;22(3):106-21.
  18. Institute of Medicine. To Err is Human, Building a Safer Health System. Washington: National Academies Press; 2000.
  19. McGlynn EA, Asch SM, Adams J, Keesey J, Hicks J, DeCristofaro A, Kerr EA. The Quality of Health Care Delivered to Adults in the United States. N Engl J Med. 2003 June 26;348(26):2635-2645.
  20. Miller MR, Zhan C. Pediatric Patient Safety in Hospitals: A National Picture in 2000. Pediatrics. 2004 Sep;114(3):907.
  21. Markle Connecting for Health. Achieving Electronic Connectivity in Healthcare [monograph on the Internet]. New York: Markle Foundation; 2004 [cited 2006 August 1]. Available from: http://www.markle.org/publications/842-achieving-electronic-connectivity-health-care-summary-financial-incentives-recommen.
  22. Markle Connecting for Health Steering Group and Personal Health Technology Council. Opportunities for CMS Action in Support of Personal Health Records [monograph on the Internet]. New York: Markle Foundation; 2005 [cited 2006 May 17]. Available from: http://www.markle.org/publications/1256-opportunities-cms-actions-support-personal-health-records.
  23. OECD [homepage on the Internet]. Paris: OECD; [updated 2004 March 6; cited 2006 June 14]. Health Spending in Most OECD Countries Rises, with the U.S. far Outstripping all Others; [about 4 screens]. Available from: http://www.oecd.org/document/12/0,2340,en_2649_201185_31938380_1_1_1_1,00.html.
  24. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington: National Academies Press; 2001.
  25. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington: National Academies Press; 2001.
  26. Robinson J. Health Savings Accounts—The Ownership Society in Health Care. N Engl J Med. 2005 Sep;353(12):1199-1202.
  27. Maze J. Consumerism Creeping into Health Plans. The Post and Courier (Charleston, SC). 2005 December 5, final ed.: E6.
  28. Tang P et al. Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption. J Am Med Inform Assoc. 2006 Mar-Apr;13(2):121-126.
  29. Denton IC. Will Patients use Electronic Personal Health Records? Responses from a real-life experience. J of Healthc Inf Manag. 2001 Fall;15(3):251-259.
  30. Tang P et al. Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption. J Am Med Inform Assoc. 2006 Mar-Apr;13(2):121-126.
  31. American Health Information Management Association [homepage on the Internet]. Chicago: American Health Information Management Association; [updated 2005 July 25; cited 2006 May 8]. AHIMA press release: Personal Health Records belong to the Patient; [about 1 screen]. Formerly available from: http://www.ahima.org/press/press_releases/05.0725.asp.
  32. Masys D, Baker D, Butros A, Cowles KE. Giving Patients Access to their Medical Records via the Internet: The PCASSO Experience. J Am Med Inform Assoc. 2002 Mar-Apr;9(2):181-91.
  33. Jimison HB, Sher PP. Advances in Health Information Technology for Patients. J AHIMA. 1998 Sep;69(8):42-6.
  34. Tang PC, Newcomb C. Informing Patients: A Guide for Providing Patient Health Information. J Am Med Inform Assoc. 1998 Nov-Dec;5(6):563-70.
  35. Winkelman WJ, Leonard KJ. Overcoming Structural Constraints to Patient Utilization of Electronic Medical Records: A Critical Review and Proposal for an Evaluation Framework. J Am Med Inform Assoc. 2004 Mar-Apr;11(2):151-61.
  36. Bluml BM, McKenney JM, Cziraky MJ. Pharmaceutical Care Services and Results in Project ImPACT: Hyperlipidemia. J Am Pharm Assoc (Wash). 2000 Mar-Apr;40(2):157-65.
  37. Broder C. Projects Tap Technology for Disease Management. iHealthBeat [serial on the Internet]. 2003 June 10; [about 3 screens]. Formerly available from: http://www.ihealthbeat.org/index.cfm?Action=dspItem&itemID=99541.
  38. Neville R, Greene A, McLeod J, Tracy A, Surie J. Mobile Phone Text Messaging can help Young People Manage Asthma. BMJ. 2002 Sep 14;325(7364):600.
  39. Billault B, DeGoulet P, Devries C, Plouin P, Chattellier G, Menard J. Use of a Standardized Personal Medical Record by Patients with Hypertension: A Randomized Controlled Prospective Trial. MD Comput. 1995 Jan-Feb;12(1):31-5.
  40. Tang PC, Newcomb C. Informing Patients: A Guide for Providing Patient Health Information. J Am Med Inform Assoc. 1998 Nov-Dec;5(6):563-70.
  41. Fierman A, Rosen C, Legano L, Lim S, Mendelsohn A, Dreyer B. Immunization Status as Determined by Patients’ Hand-Held Cards vs. Medical Records. Arch Pediatr Adolesc Med. 1996 Aug;150(8):863-6.
  42. MacDonald K. Online Patient-Provider Communication Tools: An Overview [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 November; [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/11/online-patientprovider-communication-tools-an-overview.
  43. Dishman E, Sherry J. Changing Practices: Computing Technology in the Shifting Landscape of American Healthcare. Santa Clara: Intel Corporation. 1999.
  44. Von Knoop C, Lovich D, Silverstein MB, Tutty M. Vital Signs: E-Health in the United States [monograph on the Internet]. Boston: Boston Consulting Group; 2003 [cited 2006 June 15]. Available from: https://www.bcg.com/documents/file14063.pdf.
  45. Kaushal R, Shojania KG, Bates DW. Effects of Computerized Physician Order Entry and Clinical Decision Support Systems on Medication Safety: A Systematic Review. Arch Intern Med. 2003 Jun 23;163(12):1409-16.
  46. Potts AL, Barr FE, Gregory DF, Wright L, Patel NR. Computerized Physician Order Entry and Medication Errors in a Pediatric Clinical Care Unit. Pediatrics. 2004 Jan;113(1 Pt 1):59-63.
  47. Bennett JW, Glasziou PP. Computerized Reminders and Feedback in Medication Management: A Systematic Review of Randomized Controlled Trials. Med J Aust. 2003 Mar 3;178(5):217-22.
  48. Miller RH, Sim I, Newman J. Electronic Medical Records: Lessons from Small Physician Practices [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 October [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/10/electronic-medical-records-lessons-from-small-physician-practices.
  49. Bluml BM, McKenney JM, Cziraky MJ. Pharmaceutical Care Services and Results in Project ImPACT: Hyperlipidemia. J Am Pharm Assoc (Wash). 2000 Mar-Apr;40(2):157-65.
  50. Tang PC, Newcomb C. Informing Patients: A Guide for Providing Patient Health Information. J Am Med Inform Assoc. 1998 Nov-Dec;5(6):563-70.
  51. Bennett JW, Glasziou PP. Computerized Reminders and Feedback in Medication Management: A Systematic Review of Randomized Controlled Trials. Med J Aust. 2003 Mar 3;178(5):217-22.
  52. Neville R, Greene A, McLeod J, Tracy A, Surie J. Mobile Phone Text Messaging can help Young People Manage Asthma. BMJ. 2002 Sep 14;325(7364):600.
  53. Winkelman WJ, Leonard KJ. Overcoming Structural Constraints to Patient Utilization of Electronic Medical Records: A Critical Review and Proposal for an Evaluation Framework. J Am Med Inform Assoc. 2004 Mar-Apr;11(2):151-61.
  54. Huff C. Medical Paperwork Pains: Patients Seeking Records Sometimes Frustrated. Arlington Star-Telegram (Forth Worth, TX). 1999 January 11: 1B, 5B.
  55. Miller RH, Sim I, Newman J. Electronic Medical Records: Lessons from Small Physician Practices [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 October [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/10/electronic-medical-records-lessons-from-small-physician-practices.
  56. Bluml BM, McKenney JM, Cziraky MJ. Pharmaceutical Care Services and Results in Project ImPACT: Hyperlipidemia. J Am Pharm Assoc (Wash). 2000 Mar-Apr;40(2):157-65.
  57. MacDonald K. Online Patient-Provider Communication Tools: An Overview [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 November; [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/11/online-patientprovider-communication-tools-an-overview.
  58. RelayHealth. The RelayHealth WebVisit Study: Executive Summary [monograph on the Internet]. Emeryville, CA: Relay Health; 2002 [cited 2006 June 15]. Formerly available from: https://www.relayhealth.com/rh/general/aboutUs/studyResults.aspx.
  59. Von Knoop C, Lovich D, Silverstein MB, Tutty M. Vital Signs: E-Health in the United States [monograph on the Internet]. Boston: Boston Consulting Group; 2003 [cited 2006 June 15]. Available from: https://www.bcg.com/documents/file14063.pdf.
  60. Masys D, Baker D, Butros A, Cowles KE. Giving Patients Access to their Medical Records via the Internet: the PCASSO experience. J Am Med Inform Assoc. 2002 Mar-Apr;9(2):181-91.
  61. Schoenberg R, Safran C. Internet-Based Repository of Medical Records that Retains Patient Confidentiality. BMJ. 2000 Nov 11;321(7270):1199-203.
  62. Gawthorn E. Introducing the Personal Health Record: RACGP Health Record System [Brochure]. South Melborne, Australia: Royal Australian College of General Practitioners; 1982.
  63. Miller RH, Sim I, Newman J. Electronic Medical Records: Lessons from Small Physician Practices [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 October [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/10/electronic-medical-records-lessons-from-small-physician-practices.
  64. Von Knoop C, Lovich D, Silverstein MB, Tutty M. Vital Signs: E-Health in the United States [monograph on the Internet]. Boston: Boston Consulting Group; 2003 [cited 2006 June 15]. Available from: https://www.bcg.com/documents/file14063.pdf.
  65. Bluml BM, McKenney JM, Cziraky MJ. Pharmaceutical Care Services and Results in Project ImPACT: Hyperlipidemia. J Am Pharm Assoc (Wash). 2000 Mar-Apr;40(2):157-65.
  66. Broder C. Projects Tap Technology for Disease Management. iHealthBeat [serial on the Internet]. 2003 June 10; [about 3 screens]. Formerly available from: http://www.ihealthbeat.org/index.cfm?Action=dspItem&itemID=99541.
  67. MacDonald K. Online Patient-Provider Communication Tools: An Overview [monograph on the Internet]. San Francisco: California Health Care Foundation; 2003 November; [cited 2006 June 15]. Available from: http://www.chcf.org/publications/2003/11/online-patientprovider-communication-tools-an-overview.
  68. RelayHealth. The RelayHealth WebVisit Study: Executive Summary [monograph on the Internet]. Emeryville, CA: Relay Health; 2002 [cited 2006 June 15]. Formerly available from: https://www.relayhealth.com/rh/.
  69. National Committee on Vital and Health Statistics [homepage on the Internet]. Washington: Department of Health and Human Services; [updated 2005 September 9; cited 2006 May 8]. September 9, 2005 Letter to Secretary Leavitt on Personal Health Record (PHR) Systems; [about 16 screens]. Available from: http://www.hhs.gov/healthit/ahic/consumer/.
  70. United States Department of Health and Human Services [homepage on the Internet]. Washington: United States Department of Health and Human Services; [updated 2006 May 3; cited 2006 May 8]. American Health Care Community Consumer Empowerment Workgroup; [about 2 screens]. Available from: http://www.hhs.gov/healthit/ahic/ce_main.html.
  71. American Medical Association [homepage on the Internet]. Chicago: American Medical Association; c1995-2005 [cited 2006 May 8]. Policy H-185.979 allocation of health services; [about 1 screen]. Formerly available from: http://www.ama-assn.org/apps/pf_new/pf_online?f_n=browse&p_p=T&&s_t=&st_p=&nth=1&prev_pol=policyfiles/HnE/H-185.979.HTM&nxt_pol=policyfiles/HnE/H-185.982.HTM&.
  72. American Health Information Management Association [homepage on the Internet]. Chicago: American Health Information Management Association; [updated 2005 July 25; cited 2006 May 8]. AHIMA press release: Personal Health Records belong to the Patient; [about 1 screen]. Formerly available from: http://www.ahima.org/press/press_releases/05.0725.asp.
  73. Cerner Corporation [homepage on the Internet]. Kansas City: Cerner Corporation; c2006 [updated 2004 October 12; cited 2006 June 20]. Cerner press release: Cerner Launches $25-Million, 10-Year Initiative to Provide Personal Health Records to Kids with Diabetes; [about 3 screens]. Formerly available from: http://www.cerner.com/public/NewsReleases.asp?id=257&cid=228.
  74. America's Health Insurance Plans [homepage on the Internet]. Washington: America's Health Insurance Plans; [updated 2006 January 31; cited 2006 May 8]. AHIP Statement on the State of the Union Address; [about 3 screens]. Formerly available from: http://www.ahip.org/content/pressrelease.aspx?docid=14738.
  75. California Healthline [homepage on the Internet]. Washington: Advisory Board Company; [updated 2005 May 10; cited 2006 May 8]. Former House Speaker Newt Gingrich Calls for Increased Investment in Health Care Information Technology; [about 2 screens]. Available from: http://www.californiahealthline.org/Articles/2005/5/10/Former-House-Speaker-Newt-Gingrich-Calls-for-Increased-Investment-in-Health-Care-Information-Technology.aspx.
  76. Available online at: http://www.markle.org/health/markle-common-framework/connecting-professionals/p1.
  77. National Committee on Vital and Health Statistics [homepage on the Internet]. Washington: Department of Health and Human Services; [updated 2005 September 9; cited 2006 May 8]. September 9, 2005 Letter to Secretary Leavitt on Personal Health Record (PHR) Systems; [about 16 screens]. Available from: http://www.ncvhs.hhs.gov/050909lt.htm

Markle Connecting for Health thanks Josh Lemieux, Daren Nicholson, MD, Clay Shirky, and David Lansky, PhD for drafting this paper.

 

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