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| Date | Type | Category |
Source/Sponsorship |
|---|---|---|---|
| July 1, 2004 | Report, White Paper | Health | Markle |
| The Mother's Bond My son Alex suffers from hydrocephalus, an uncommon condition that forces an abnormal accumulation of fluid inside his brain. His condition is treated with insertions of shunts into his skull to let the excess fluid drain. If the shunts should fail, Alex could lapse into a coma and even die. Quick and appropriate intervention for my son and other hydrocephalus patients is critical. | |||
| July 1, 2004 | Report, White Paper | Health | |
| Trust but Verify A doctor I see for my thyroid tumor recently made a mistake. While the recommendation of the specialist, an endocrinologist, in this case didn’t cause me to lose a limb or seriously jeopardize my health, the experience did give me first-hand insight of how easy medical mistakes happen when doctors don’t have access to information when making decisions. | |||
| July 1, 2004 | Report, White Paper | Health | |
| Achieving Electronic Connectivity in Health Care: Summary of Organizational and Governance Recommendations To encourage the government to enable organizational and governance progress as well as the industry to move forward and begin to develop ... | |||
| July 1, 2004 | Report, White Paper | Health | |
| Achieving Electronic Connectivity in Health Care: Summary of Recommendations: Technical Panel Includes outlines of guiding principles and rationale for a health information infrastructure, linking, applications, and data standards. | |||
| February 1, 2008 | Brief | Health | Markle |
| Beyond Consumer Consent: Why We Need a Comprehensive Approach to Privacy in a Networked World Consumer consent has long been seen as the privacy pillar for networked health information. But a privacy approach that rests solely on ... | |||
| September 1, 2008 | Brief | Health | Markle |
| A 21st-Century Approach to Privacy We need a 21st century privacy approach allowing Americans to protect and share health information to improve quality. Americans are eager ... | |||
| January 1, 2004 | Brief | Health | Markle |
| Collaborative response flow chart See how information passes from individual to shared network for easy, secure access to shared information. | |||
| June 25, 2008 | Brief | Health | Markle |
| Markle Common Framework for Networked Personal Health Information: Consumer Policy Brief This policy brief explores how “Millie” — a 21st Century consumer — would benefit under a Common Framework to help her ... | |||
| June 25, 2008 | Brief | Health | Markle |
| Markle Common Framework for Networked Personal Health Information: Consumer Technical Briefs This policy brief explores how “Millie”—a 21st Century consumer—would benefit under a Common Framework to help her ... | |||
| June 11, 2009 | Collaborative Comment | Health | |
| Establishing Regional Centers to Assist Providers to Become Meaningful Users of HIT Markle, the Center for Democracy and Technology, and others draft a description for a program to establish regional centers to assist health care providers seeking to adopt and become meaningful users of health information technology. The statement was provided to the National Coordinator for Health Information Technology at the US Department of Health and Human Services. | |||
See how clinicians, consumers, and policy makers could make better decisions if they were securely networked to share information.
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