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| Date | Type | Category | Source/Sponsorship |
|---|---|---|---|
| June 1, 2008 | Brief | Common Framework | Markle |
| Common Framework for Networked Personal Health Information: Includes an example of how a consumer would benefit from and key messages of the framework's policy resources. | |||
| January 31, 2011 | Survey | Health | Markle |
| Patients Should Be Able to View and Download Their Health Info The public and physicians agree that patients should have online tools to view, download, and share their health information. | |||
| January 31, 2011 | Brief | Health | Markle |
| Overwhelming Agreement on Health IT Priorities to Improve Patient Care Public investments in health IT should come with accountability and privacy protections, and lead to improved health. | |||
| December 1, 2005 | Article, Op-Ed, Essay, Letter | Health | Markle |
| Model Sub-Network Organization Terms and Conditions: Topic List Model Sub-Network Organization Terms and Conditions Topic List Introduction: This document ("Topic List") describes the issues ... | |||
| July 1, 2004 | Report, White Paper | Health | Markle |
| The Mother's Bond My son Alex suffers from hydrocephalus, an uncommon condition that forces an abnormal accumulation of fluid inside his brain. His condition is treated with insertions of shunts into his skull to let the excess fluid drain. If the shunts should fail, Alex could lapse into a coma and even die. Quick and appropriate intervention for my son and other hydrocephalus patients is critical. | |||
| February 1, 2008 | Brief | Health | Markle |
| Beyond Consumer Consent: Why We Need a Comprehensive Approach to Privacy in a Networked World Consumer consent has long been seen as the privacy pillar for networked health information. But a privacy approach that rests solely on ... | |||
| September 1, 2008 | Brief | Health | Markle |
| A 21st-Century Approach to Privacy We need a 21st century privacy approach allowing Americans to protect and share health information to improve quality. Americans are eager ... | |||
| January 1, 2004 | Brief | Health | Markle |
| Collaborative response flow chart See how information passes from individual to shared network for easy, secure access to shared information. | |||
| June 25, 2008 | Brief | Health | Markle |
| Markle Common Framework for Networked Personal Health Information: Consumer Policy Brief This policy brief explores how “Millie” — a 21st Century consumer — would benefit under a Common Framework to help her ... | |||
| June 25, 2008 | Brief | Health | Markle |
| Markle Common Framework for Networked Personal Health Information: Consumer Technical Briefs This policy brief explores how “Millie”—a 21st Century consumer—would benefit under a Common Framework to help her ... | |||
"Instead of me trying to recite 15 meds, I was able to take my iPad out, pull my blue button data, and actually hand that to the nurse and physician."
Comprehensive frameworks for privacy and security for networked personal health information