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Mother and Daughter The Connecting for Health Common Framework

Connecting for Health has released the Common Framework for Networked Personal Health Information for new Internet services that help consumers track and improve their health. It defines a set of practices that can help protect personal information and enhance consumer participation in online personal health records. Diverse groups   including AARP and consumer and privacy organizations, health insurers, health care providers, and technology companies Dossia, Google, Intuit, Microsoft, and WebMD   have endorsed the framework.

Oil Rig
EXPLORING NEW PROCESSES TO DEVELOP U.S. ENERGY SECURITY POLICIES

The Markle Foundation, in partnership with the Center for a New American Security (CNAS), has completed a Solarium Project on energy security. The goal of this work was to define the essential components of a comprehensive energy security policy for the United States. Markle and CNAS are now considering whether and how to develop information flow processes and collaborative policy structures that can help inform sound energy policies. These efforts are designed to assist the incoming presidential administration in ensuring that energy and climate change challenges are not overlooked in the design and implementation of new national security initiatives. James B. Steinberg, dean of the Lyndon Baines Johnson School of Public Affairs at the University of Texas at Austin, has joined this collaborative effort. He will be leading a team from LBJ and the Center for International Energy and Environmental Policy at the Jackson School of Geosciences (University of Texas).

Visit the Energy Security Project Page.
Read about the CNAS Solarium II Project.

Trusted Network Implementing a Trusted Sharing Environment

Creating a trusted information sharing environment (ISE) as envisaged by the Markle Task Force on National Security in the Information Age requires that users and the public have confidence in the system. To establish and maintain trust, security, privacy and accountability, the ISE should incorporate Immutable Audit Logs (IALS) as part of its robust security and audit features. This paper explores the technical, policy, and security issues surrounding IALs as well as the potential benefits and drawbacks of using immutable audit logs in the ISE. The paper explains how maintaining tamper-resistant logs of user activity on the network increases security, builds trust among users, ensures compliance with relevant policies and guidelines, improves transparency, and provides the ability to conduct oversight by appropriate stakeholders outside of the system.

Download Using Immutable Audit Logs to Increase Security, Trust and, Accountability (PDF, 356K)

Doctor and Child Mobilizing Information to Prevent Terrorism

The Markle Foundation Task Force on National Security in the Information Age today released its third report with recommendations on how to reconcile national security needs with civil liberties requirements. The report offers a new "authorized use" standard for government handling of legally collected information that bases authorization to view information on how the information is going to be used, rather than on the nationality of the subject or the location of collection. The report also proposes a new risk management approach to sharing classified information that balances the risk of leaks of classified information with the security risk that can come from failing to share information with those who need it to understand the threats to national security. Further, the report identifies examples of technology that can be used effectively to provide appropriate oversight and accountability.

Download Entire Report (4.8 MB)
Download Visualization (PC, .ZIP, 72.1 MB)
Download Visualization (Macintosh, .ZIP, 50.0 MB)
Read Press Release
Review additional National Security Task Force Reports

Woman at Computer

The second national Connecting Americans to Their Health Care conference took place in Washington, DC in December 2006. More than 700 consumer and patient advocates and leaders in health care, business, and government, took part in this free 3-day program focused on ways to enable PHRs to communicate across the Nationwide Health Information Network (NHIN). Results from our newest public opinion survey on American's attitudes towards gaining greater access to their own personal health information were also released.

Click here to access material and presentations given at the 2006 PHR Conference.

Mouse and World Globe KatrinaHealth.org

The Markle Foundation released Lessons from KatrinaHealth, a report that describes KatrinaHealth and makes recommendations to better prepare the nation to provide secure online access to patient prescription drug records in the event of future disasters. KatrinaHealth is an online service that helped individuals affected by Hurricane Katrina work with their health professionals to gain access to their own electronic prescription medication records. Through KatrinaHealth.org, authorized pharmacists and doctors were able to get records of medications evacuees were using before the storm hit. This information helped healthcare professionals avoid harmful prescription errors and coordinate care. KatrinaHealth.org was awarded the 2006 Pinnacle Award by the American Pharmacists Association Foundation.

Read Press Release
Report: Lessons from KatrinaHealth

August 19, 2008
Carol Diamond and Clay Shirky caution that focusing solely on technical standards to transform our health care system can cause us to overlook serious barriers that have nothing to do with technology. If we are to unlock the potential of information technology, we need to expand beyond narrowly focused standards setting, according to the co-authors in an article published by Health Affairs.

Read the article: Health Information Technology: A Few Years of Magical Thinking?
Read the news release (PDF, 36K)
Read response by Robert Kolodner, et al.
Read response by David Kibbe, et al.

July 30, 2008
Carol Diamond, MD, MPH, presents four critical approaches to analyzing data to determine the most effective health care treatments. Her presentation was part of the Summer 2008 IOM Roundtable on evidence-based medicine.

Click here to view the presentation (PDF, 4.1 MB).

July 29, 2008
Carol Diamond, Chair of Connecting for Health, described to the American Health Information Community (AHIC) how a common set of practices can foster innovation and consumer choice in emerging personal health information services.

Click here to view Carol Diamond’s presentation (PDF, 895K).

July 23, 2008
Jeffrey H. Smith, a member of the Markle Task Force on National Security, called for renewed leadership in implementing a trusted information-sharing environment during his testimony to the Senate. The hearing was convened by the Senate Committee on Homeland Security and Governmental Affairs.

Click here to read Mr. Smith's testimony (PDF, 129K).
Click here to learn more about the hearing and read other panelists' testimonies.

July 22, 2008
Markle president Zoë Baird and Google’s Marissa Mayer facilitated a Lunchtime Lab at FORTUNE’s Brainstorm Tech in Half Moon Bay, CA. Participants discussed new technological opportunities and challenges specific to health care.

Click here to learn about the conference.

June 25, 2008
Americans overwhelmingly believe electronic personal health records could improve their health but want privacy protections, according to new Markle survey.

Click here to read more (PDF, 527K)

May 18, 2008
Carol Diamond and Linda Kloss of AHIMA tell listeners of Radio Health Journal about the ways in which electronic health records will revolutionize how consumers manage their own health care.

Click here to listen to the interview (MP3, 11 min. Copyright Notice)

May 8, 2008
Carol Diamond speaks to the New America Foundation about the need for making greater inroads in the development and implementation of health information technologies.

Click here to read Part I of the blog interview.
Click here to read Part II of the blog interview.

April 14, 2008
Markle Foundation president Zoë Baird delivered the Industry Keynote Address at the Netsmart Connections2008 Conference in Orlando, Florida. Ms Baird's speech outlined the core attributes necessary to build a trusted and interoperable health information exchange environment that can transform health care in the United States.

Click here for a transcript of Ms. Baird's keynote speech (PDF, 105K)

arrowSee more articles, essays, and speeches.
arrowGo to Markle in the News.


August 20, 2008
Carol Diamond, Chair of Connecting for Health, will discuss the creation of the Common Framework and its application to networked personal health information services at HIPAA Summit XVI at Harvard University.

Click here to find out more about the session.
Click here to register for the event.

Markle Weekly Digest

Sign up
for the Markle Foundation's Weekly Digest on emerging Information Technology issues.

Among the Highlights of the Weekly Digest for August 8, 2008:

  • Sharing information -- and fears
  • Inside the CIA's extreme technology makeover
  • To your health: The serious side of social networking
  • Health 2.0 and Medicine 2.0: Tensions and controversies in the field
  • How cloud computing is changing the world
  • A Declaration for Independence
  • United States health system is a 'national tragedy'
And much more!

PDF Weekly Digest (820k)
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