P1
Related Practice Areas
- The Markle Common Framework: Overview and Principles
- P2: Model Privacy Policies and Procedures for Health Information Exchange
- P3: Notification and Consent When Using a Record Locator Service
- P6: Patients' Access to Their Own Health Information
- P8: Breaches of Confidential Health Information
Additional Resources
Download P1: The Architecture for Privacy in a Networked Health Environment
Works Cited
Alpert, Sheri A. 2003. “Protecting Medical Privacy: Challenges in the Age of Genetic Information.” Journal of Social Issues 59:2: 301.
Bennett, Colin. 1992. Regulating Privacy: Data Protection and Public Policy in Europe and the United States. Ithaca, NY: Cornell University Press.
Brandeis, Louis D., and Samuel D. Warren. 1890. "The Right to Privacy." Harvard Law Review 4, 193–197.
Clayton, Paul. 1997. For the Record: Protecting Electronic Information. National Academy Press.
Froomkin, Michael. 2000. "The Death of Privacy?" Stanford Law Review 52: 1461, 1469.
Goffman, Erving. 1966. Behavior in Public Places: Notes on the Social Organization of Gatherings. New York, Free Press.
Goldman, Janlori. 1998. “Protecting Privacy To Improve Health Care.” Health Affairs (Nov-Dec): 47.
Goldman, Janlori. 1999. "Privacy and Individual Empowerment in the Interactive Age." Pp. 97 in Visions of Privacy, eds. Colin Bennett and Rebecca Grant. Toronto: University of Toronto Press.
Goldman, Janlori. 2001. “The New Federal Health Privacy Regulations: How Will States Take the Lead?.” Journal of Law, Medicine and Ethics 3/4: 2: 395.
Goldman, Janlori, and Zoe Hudson. 2000. “Virtually Exposed: Privacy and E-Health.” Health Affairs (Nov-Dec): 141.
Health Privacy Working Group. 1999. Best Principles for Health Policy. Available at: http://www.cdt.org/files/file/33807.pdf.
Kelman, Alistair. 2000. “Review of Database Nation: The Death of Privacy in the 21st Century by Simson Garfinkel.” JILT (1). Available at: http://www2.warwick.ac.uk/fac/soc/law/elj/jilt/2000_1/kelman/.
“Medical Files or Fishbowls?” Washington Post, 23 September 1997, A16.
Miller, Arthur. 1971. The Assault on Privacy: Computers, Data Banks and Dossiers. Ann Arbor: University of Michigan Press.
Naser, C., and Sheri A. Alpert. 1999. Protecting the Privacy of Medical Records: An Ethical Analysis (White Paper). Lexington, MA: National Coalition for Patient Rights.
Pritts, Joy et al. 1999. The State of Health Privacy: An Uneven Terrain (A Comprehensive Survey of State Health Privacy Statutes). (Available upon request from the author.)
Pritts, Joy. 2002. "Altered States: State Health Privacy Laws and the Impact of the Federal Health Privacy Rule." Yale Journal of Health Policy, Law, and Ethics II(2): 327–364.
Pritts, Joy et al. 2003. The State of Health Privacy, Second Edition, A Survey of State Health Privacy Statutes. Available at:http://medicalrecordrights.georgetown.edu/publications.html
Solove, Daniel, and Chris Hoofnagle. 2005. "A Model Regime of Privacy Protection," George Washington University Law School Public Law Research Paper No. 132. Available at: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=681902.
Westin, Alan. 1967. Privacy and Freedom. New York: Atheneum.
Westin, Alan. 2003. “Social and Political Dimensions of Privacy.” Journal of Social Issues 59:2: 431